In Thursday's paper (North Carolina's News & Observer) there was an article featured on the front page about a Craniosynostosis surgery at Duke Hospital. Duke is where Emersyn had her surgery. I was very excited to see the article! I'm saving it for Emersyns baby book.
Before Emersyns surgery we had never heard of Craniosynostosis. I think it's important to make people aware. There are so many Cranio families that didn't realize there was anything wrong with their little one, therefore had surgery later in life. Keep in mind, surgery before five months is preferred. Some children are almost 2 before their condition is fixed. Emersyn has created awareness in our small community of family and friends. I know this because we received many texts, emails and FB messages alerting us of the newspaper article. That tells me that those people thought of her and could relate it to our situation. I'm thankful for that.
It's now our job to educate others. We WERE those people who assumed we'd have healthy babies. I don't think any parent is prepared for a situation like this, but it was the information and support we received from other families in the same situation that helped us. We in turn want to help others through our experience.
Here is the link to the newspaper article:
*Also as a side note: Emersyn had a traditional strip craniectomy. The baby in the article and the endoscopic version that requires a helmet for 18 months after the surgery. They both had a similar condition and the surgery was preformed the same doctor.
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